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A recent COHRED issue paper, “Health Research: Powerful Advocate for Health and Development Based on Equity” (COHRED 2000e), provides a full discussion of each of the key messages, including ways of reaching the objective contained in the message and the risks involved. The remainder of this section briefly describes each of these three messages (based on the issue paper). Put countries first
Makerere University, Uganda
Medical and Public Health Service of Curaçao, Curaçao Perhaps the strongest argument for putting countries first is the tremendous success of those nations that have done exactly that. Self-interest has driven R&D in developed countries — such as Japan, the United States, and those in Western Europe — to great effect. Obviously, owing to limited resources, developing countries face a tremendous challenge in investing in R&D. However, the point remains that national research efforts that respond directly to specific health problems have had the most success. Current trends in globalization and increasing inequities make the country focus even more important, particularly a focus on the poorest, most marginalized countries. Although technologies are now available to rapidly disseminate new knowledge around the world, the reality is that developed countries are the main beneficiaries — the “globalization of knowledge” is a misnomer. Privatization of research, tighter intellectual property rights, and the growing gap in access to communication technologies are all factors working against the interests of the poor in developing countries. Although these countries try to take advantage of the “global economy,” they need to ensure that the concerns of their people are not lost in the process. The objectives of national research in developing countries are at least fourfold. The first is to make more effective use of existing knowledge, technologies, and health interventions. In some cases, this may mean adapting knowledge and technologies for local use; in others, it will mean making current interventions more efficient and effective. A second objective is to make currently effective (yet expensive) interventions simpler and more affordable. Often, this will involve collaboration with researchers from other countries where people experience similar health problems. A third objective is to participate in research to discover new ways of dealing with priority problems. In some instances, developing countries may get involved in the research; in others, they may only advocate research to address their priorities, without necessarily participating in it. Their advocacy may focus on international investors and agencies, as well as on researchers in developed countries. A fourth objective is to protect against misinformation and exploitation; for example, manufacturers and distributors of pharmaceutical and health products in developing countries often use distorted information, together with incentives, when marketing their products. The tobacco industry has used similar tactics, such as misinforming people about filtered cigarettes. Work for equity in health
Beijing Hui Long Guan Hospital, China
Left to market forces and curiosity alone, health research would tend to reflect the priorities and health problems of the rich. Instead of helping to narrow the gap between rich and poor, it would simply widen existing disparities. Health research should actively work to eradicate such disparities. Underpinning this argument is the belief in the worth of every individual and the belief that every person is entitled to realize that worth. Another compelling argument is that health for all promotes national development. Countries impede their economic growth and social development by underinvesting in the health of the poor. A high burden of disease — found largely among the poorest countries — hinders both economic growth and human development and limits international competitiveness. We now see evidence that equity-oriented strategies contribute directly to economic growth. Working for equity also improves efficiency. Countries can make the biggest reduction in the burden of disease if they concentrate on improving the health status of those who carry the heaviest burden of disease, and these are almost invariably the poor and other marginalized groups. Unlike improvements in the health status of wealthier nations, which will require dramatic technological breakthroughs to make giant leaps forward, relatively small investments in the application of existing knowledge can substantially improve the health of at least some of the poor. Efforts to further reduce the burden of disease through existing technologies depend largely on enhanced technical efficiency, better allocation of resources, and greater cost-effectiveness. With local knowledge and customized application, we can squeeze far more benefit out of new or existing interventions. In many African countries, for example, people widely access both the traditional and the Western health-care systems. A growing concern has been that some practices of African traditional healers place them and their patients at risk for HIV–AIDs. Healers may use the same razor to scarify several patients, take a patient’s blood into their own mouth in the practice of “biting out,” or rub herbal medicines into open cuts with unwashed hands. Ethnographic research has highlighted the importance of the sociopolitical and cultural context of healing practices, as well as indigenous understanding of AIDs, in developing a culturally appropriate HIV–AIDs educational intervention in which traditional healers collaborate in identifying risky therapeutic practices and in finding and applying solutions (Willms et al. 1996). Link research to policy and action
National Institute of Health Research for Development, Ministry of Health, Indonesia
The private sector is driven by profit and zeal to yield the best rate of return on investment. Perhaps that is why the private rather than the public sector leads the way in redefining processes of innovation and replacing fairly static and step-by-step approaches with more dynamic and interactive ones. The priorities of private industry differ in many important ways from those of the public sector, especially the public sector’s global role in safeguarding and promoting fundamental research. Nevertheless, researchers working to promote health can learn much from the experience of technological development. Weak demand for research may lead to inefficient outcomes: the failure of research to meet the needs of potential users; or even the complete neglect of important research topics. This has several implications:
Some concrete ways to overcome these inefficiencies would be to promote research by the poor themselves and to link research to action to improve the health of the poor. (See Chapter 4 on participatory research and empowerment.) Linking research to action can improve the quality of research as well. Testing and revising knowledge by applying it to real-world problems can strengthen the quality of the research, rather than compromising it. This is an important argument to make with people in the academic community, who are less likely to be persuaded by the above-mentioned arguments of effectiveness or efficiency. Current role and activitiesCurrently, COHRED’s primary function is to take its three messages to developing countries and the international health R&D community. COHRED also continues to provide technical support to countries implementing ENHR. It works with national research leaders to promote health research as a tool for development, establish research priorities, strengthen mechanisms to support research, and build research and user capacities. Specifically, it facilitates the interaction between health-research leaders, within and between countries. In this way, it helps these countries share experiences and insights into creating a stimulating research environment focused sharply on the goals of better health and greater equity. COHRED also provides an active forum for sharing experiences of ENHR. Through a series of printed and electronic publications, forums for discussion, and joint initiatives, COHRED is enabling researchers, health workers, ministries of health, community organizations, and others to share experiences and learn from one another. COHRED’s regional- and country-level initiatives aim to share information and ideas as widely as possible. Regional networking activitiesAfricaJust over a year after the creation of COHRED, the first African ENHR networking meeting convened in Mombassa, Kenya (May 1994). The participants (more than 30 individuals from seven African countries) recognized the value of sharing country experiences of ENHR and strongly recommended that such meetings be held regularly. As a result, the regional network has been holding these meeting each year in various African locations (Accra, Arusha, Harare, Kampala). Professor Raphael Owor of Uganda was the first regional network coordinator; he was succeeded in 1999 by Dr Steve Chandiwana of Zimbabwe. These meetings have been contiguous with others, such as the Fourth Africa ENHR meeting in Arusha, held in conjunction with a special conference on health policy in Africa (which IHPP cosponsored) and the World Conference of Public Health Associations. A joint meeting of ENHR, the African Clinical Epidemiology Network, and the Public Health School Without Walls took place in Kampala, in October 1996. A subregional network for French-speaking countries has operated for the past several years, providing a subregional francophone coordinator. The regional network has established communication links with other African regional health-research organizations, in part as an outcome of a “networking-the-networks” meeting held in January 1996, in conjunction with a global meeting of INCLEN held in Victoria Falls. The African ENHR Mentoring Team manages the program and activities of the network. This team includes the regional coordinator and African members of the COHRED Board. It has taken on various functions, such as providing advice and support for individual countries, liaising with the COHRED Secretariat and Board and regional organizations (such as the WHO Regional Office for Africa), and planning the annual ENHR networking meeting. To prepare for the October 2000 conference in Bangkok, the Mentoring Team has participated in an intensive consultation process to ensure that a strong and clear “African voice” speaks for Africa at the conference. AsiaRepresentatives have been meeting from Asian countries engaged in the ENHR strategy: their first meeting was in Thailand in 1995, followed by meetings in the Philippines (1996), Viet Nam (1997), and Lao PDR (1998). The Asian ENHR network has created collaborative regional task forces and project groups, such as working groups on resource flows and a regional study on equity. It rotates its secretariat every 2 years. Bangladesh initially hosted the network, followed by the Philippines and, currently, Thailand. Regional cooperation has characterized a number of national activities, such as priority-setting workshops in Indonesia, Lao PDR, Nepal, and Viet Nam and a training workshop on research management and networking, in Thailand. During the past year, the Asian ENHR network has been involved in an intensive review of the status of health research for development in Asia in preparation for the Bangkok conference. It has attempted specifically to “widen the circle” and involve as many Asian groups with direct involvement in health research as possible. To do this, it made innovative use of information and communication technologies over the several months leading up to the dynamic Asian Forum on Health Research, in Manila in February 2000. The CaribbeanThe Commonwealth Caribbean Medical Research Council (CCMRC) (now the Caribbean Health Research Council [CHRC]) strongly facilitated the introduction and development of ENHR in the Caribbean region (specifically, the 18 English-speaking countries and the Netherlands Antilles). At the November 1995 joint CCMRC–COHRED workshop in Jamaica, teams from five countries discussed issues of priority-setting for health research, and they prepared country ENHR plans. Four of the five countries presented progress reports in April 1996 at a meeting of CCMRC in Trinidad. As the regional ENHR networking body, CCMRC also created a dedicated position for an ENHR scientist. Between September 1995 and May 1998, this scientist supported processes for preparation and prioritization of research proposals and organized workshops on research skills. During a regional consultation in 1997, the Caribbean Cooperation in Health (CCH) initiative identified eight health-research priorities for the region, along with strategies for implementation and joint action. CCMRC became CHRC and began the process of defining a regional health-research agenda for the eight priorities. So far, four countries in the region have established ENHR committees: Barbados, Curaçao, Jamaica, and Trinidad and Tobago. Eastern Europe–Central AsiaEastern Europe launched its network-building process through the leadership of Dr Peter Makara. In June 1996, a workshop was jointly organized by the Hungarian National Institute for Health Promotion, COHRED, and the International Forum for Social Sciences in Health. This was followed in November 1997 by the Workshop on Inequity and Health: From Research to Policies. Participants discussed building the capacity of Central and Eastern European countries and the Baltic states for research, policy, and action to meet the challenges of inequity in the region, which include poverty, social exclusion, unemployment, migration, homelessness, minority issues, and other important aspects of socioeconomic disadvantage. In 1999, the Bishkek Declaration extended the regional network to include the Central Asian republics and Kazakhstan (CARK). A workshop was held with representatives from the CARK countries, researchers, and members of the CARK Mother and Child Health Forum. Many international agencies and donors attended the workshop, including COHRED, the WHO Regional Office for Europe, the United Nations Children’s Fund, the United Nations Fund for Population Activities, the Centres for Disease Control, and the World Bank. Participants made a commitment to adopt ENHR. Recently, the network also undertook a regional consultation to help develop its health-research agenda for the next decade and prepare for the conference in Bangkok. Latin AmericaIn November 1999, the Latin America region launched a consultation process to prepare for the Bangkok conference. Similar to consultations in the other regions, it involved representatives from a number of existing networks (the Latin American and Caribbean Women’s Network, INCLEN, and the Health Systems and Services Research Network in the Southern Cone), various government agencies (Health ministries and science and technology councils), and a number of universities. It culminated in a synthesis meeting in Buenos Aires, in June 2000, where the various participants purposed forming a more permanent link (that is, a network of networks). The momentum created by the consultation process, it is hoped, will carry over, with participating countries strengthening their health-research systems through a clear orientation in favour of equity and social and gender justice. Future directions for COHREDIn parallel with the many preparations for the October 2000 conference, COHRED continued to review its activities of the last several years, as well as look ahead to its possible future contribution. Past and present COHRED Board members participated in this process, which has clarified the council’s future tasks and roles. COHRED has broadened its role in support of ENHR. It continues to serve as an advocate of ENHR, but with a newly articulated and focused set of messages, as well as a stronger communication strategy. When country groups asked for support to improve their ENHR competencies, COHRED responded with tool kits, forums for sharing country experiences, and leadership training. In doing so, it has become a learning community and a collegium in which colleagues encourage and support each other in the ongoing work of achieving COHRED’s goals: putting countries first, working for equity in health, and linking research to action. As it looks ahead to the next decade, COHRED envisions an enhanced role as broker of coalitions and partnerships. Thus far, it has developed partnerships with like-minded organizations, such as WHO (headquarters and regional offices), INCLEN, GFHR, and the Alliance for Health Policy and Systems Research; worked to create networks; and helped to link countries with donors. COHRED would like to strengthen its efforts in these areas and build coalitions with the widest possible range of stakeholders. The organization sees the following as its key tasks for the coming years as it fulfills each of the four roles described above: As an advocate
As a broker
As a learning community
As a collegium
Additionally, COHRED will work to develop qualitative and quantitative measures of ENHR’s success and COHRED’s own performance. This will entail, among other things, choosing a definition of equity and making it practical by describing specific gauges and initiatives to promote and measure equity trends. Views of national research leadersBetween July 1999 and May 2000, COHRED collected the views of a number of national research leaders on key challenges and future directions for ENHR. On an opportunistic basis, it invited 19 national research leaders to participate in in-depth interviews. All agreed to the interviews, and relevant portions of each were transcribed. A document analysis of the reports of four site visits conducted during the African consultation also offered some interesting perspectives. The overarching message from national leaders was that ENHR must work to simultaneously effect change at the local (community and district), national, regional, and global levels, but without losing its focus on countries. Specifically, the research leaders called for the following:
To let the voice of the national research leaders come through, the remainder of this chapter presents direct quotations from these individuals and from the reports of the site visits, followed by a short summary of the key points that the participants raised under each of the above recommendations. (Appendix 8.1 provides a list of these individuals and of the site-visit reports used.) Local solutions for local problems
Makerere University, Uganda
Health-research priority-setting should follow a bottom-up rather than top-down approach. Local (community and district) health problems and needs should drive national health-research agendas, and the resulting policies and programs must be locally appropriate, taking account of the social, cultural, economic, and political context. Community members need to have a real voice in determining health-research priorities, and the researchers should empower them to find solutions to their health problems. Traditional healers, along with women’s groups and other previously overlooked segments of the community, should be counted among the various stakeholder groups and given equal respect. The local level is where we are likely to realize the greatest improvements in equity. Strengthened national leadershipA comprehensive approach to strengthening national leadership must go beyond skills training and recognize the fundamental need to change attitudes, values, and motivations in research, health, and equity. Without such changes, we are unlikely to achieve a pro-equity political agenda, allocate greater resources to health research, link research to action, or build research capacity. Achieving a pro-equity political agenda
Medical and Public Health Service of Curaçao, Curaçao Research has helped greatly to elucidate inequities. Doing something about them also requires political will. Research may help to formulate and evaluate policy options, but a pro-equity political agenda is paramount. Much political will (and, consequently, research) focuses on improving the efficiency of health systems. It is assumed that greater efficiency will create savings, which can in turn be redistributed to the benefit of the poor; in addition, decision-makers like to focus on problems for which they can find a “quick fix.” Allocating greater resources to health research
Makerere University, Uganda No matter how poor the country, national leadership must make research a priority and allocate a portion of its budget accordingly. Linking research to action
Medical and Public Health Service of Curaçao, Curaçao
Governments need to develop a culture of evidence-based, transparent, and accountable decision-making. To bridge research and policy, we also need research managers who can communicate with both sides and understand the policy uses and implications of research. Strengthening research capacity
Ministry of Health, Pakistan
Community Health Department, Mali Research capacity-strengthening is not only about training more researchers but also about retaining them once they are trained. Stemming the flow of researchers out of developing countries remains a significant challenge. National leadership needs to invest in health researchers as much as in health-research projects and programs. Researchers should reap rewards in recognition and remuneration. An interim solution to the brain-drain problem might be for national research-coordinating bodies to think less in geographical terms and attempt to enlist national researchers abroad to work on health problems in their home countries. Information poverty is a serious obstacle facing health researchers in the developing world. The simple lack of equipment, computers, telephones, and electricity is a major barrier. Greater regional cooperation
Ministry of Health, Pakistan
Makerere University, Uganda That there is “strength in numbers” is a prevailing truism, not only when comes to mobilizing external donor funding, but also when it comes to sharing research expertise. African-country representatives, in particular, perceive the need to build regional networks to give a stronger voice to country concerns at the international level. As well, those countries with fewer resources may benefit from the experience of the more fortunate ones. A regional research program would eliminate duplication of effort and the resulting waste of the region’s limited resources. A new deal with donors
Ministry of Health and Child Welfare, Zimbabwe
Research and Development Centre, Kenya
Research is a global good. Many developing countries must lose their “beggar attitude” toward international donors. By the same token, we need a new global research-funding architecture and donor mind-set to allow funding to go directly to Southern researchers and institutions. Currently, a two-tier research architecture is in place that views scientists from the South as second-class researchers — “field researchers” or “national scientists.” Donors channel funds through Northern institutions, and the institutions use these funds largely to support the work of their own Northern researchers, not that of their Southern “partners.” ConclusionAt the start of the new century, ENHR appears well poised to improve health for all, based on country-led research and action. A clearer sense of mission will guide this work, one of putting countries first, working for equity in health, and linking research to policy and action. Yet, the future demands change, not just at the country level, but at the district, regional, and global levels as well, to achieve the goals of ENHR. COHRED has emerged from its adolescent years with a keener sense of its organizational identity. In its multiple roles as advocate, broker, learning community, and collegium, it will continue to respond creatively and effectively to the needs and concerns expressed by countries. Appendix 8.1List of national research leaders and site-visit reports used in the survey National research leadersDr Mohamed Said Abdullah Prof. Gopal Prasad Acharya Dr Said Ameerberg Dr Boungnong Bhoupa Dr Steve Chandiwana Mr Abu Yusuf Choudhury Dr Somsak Chunharas Prof. Pham Huy Dung Prof. E.M. Essien Dr Izzy Gerstenbluth Dr Samia Yousif Idris Habbani Dr Soumare Absatou N’iaye Prof. Raphael Owor Dr Michael Phillips Prof. Akhtar Ali Qureshi Dr Bassiouni S. Salem Dr Lye Munn Sann Dr Agus Suwandono Prof. Tissa Vitarana Site-visit reportsBenin Burkina Faso Burundi Sudan |
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